Patient
First
Policy

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It is time to fix the financial burden placed on people living with chronic diseases.

We Are

The Patient Pocket Protector Coalition brings together a diverse group of chronic illness stakeholders to form a unified coalition that advances our purpose through political action. With a united voice, policy insight and actionable engagement we are sharply focused on addressing Pharmacy Benefit Manager (PBM) rebate reform to protect the pockets of patients burdened with the high cost of managing their health every day.

We work with state legislators to introduce patient-first policies addressing the financial burdens of the 133 million Americans living with chronic illnesses, beginning with rebate reform.

We Will

The Patient Pocket Protector Coalition holds politicians accountable for out-of-pocket costs and unregulated Pharmacy Benefit Managers.

The purpose of the Coalition is to unify chronic illness advocates, build legislative support to drive policy change and tackle financial toxicity impacting out-of-pocket patient costs.

We Believe

The Patient Pocket Protector Coalition believes that these rebates should be shared with patients, and have prioritized the following legislative principles

A minimum of 80% of rebates and discounts must be passed through to patients at the point of sale

All copays that are a percentage of price must be calculated based on the price net of rebates and discounts

Civil penalty per violation to be levied by the state department of insurance or other entity for noncompliance by an insurer

We Know

According to the CDC,
‍six in ten Americans live with chronic disease, 133 million people in total.

Four in ten American adults have two or more chronic illnesses.

Chronic illnesses account for 75% of the $2.2 trillion we spend on healthcare each year.

Chronic diseases are the leading cause of death and disability in America, and they are also a leading driver of healthcare costs.

On average, PBMs negotiate a 48% rebate across all branded drugs.

Bringing together voices across the patient community will meaningfully impact the chronic illness conversation in America in common refrain. By addressing the issue of PBM Rebate Reform with one voice from many perspectives, we create exponentially stronger impact.

Bringing together voices from across the patient community will meaningfully impact the conversations around living with and managing a chronic illness in America. By addressing the issue of PBM Rebate Reform with one voice from a variety of perspectives, we can make a stronger impact.

It is time to fix the financial burden placed on people living with chronic diseases.

It is time to protect patients’ pockets by holding politicians accountable for out-of-pocket costs and unregulated Pharmacy Benefit Managers.

Pay to Live Music Video

"Pay to Live" illustrates some of the challenges that patients with chronic conditions – like diabetes – face in affording and accessing lifesaving and life-sustaining medications. It also cleverly calls out one of the biggest villains in the American prescription pricing system: Pharmacy Benefit Managers (PBMs).

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Patient Stories

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